Have you ever heard of Microtia? Microtia is a little known congenital deformity where the outer ear and/or the ear canal is not developed causing hearing impairment. Microtia can affect one ear or both ears and occurs in 1 of every 8,000-10,000 births. Below you will find resources and information that will help you learn more about Microtia.
Where To Learn About Microtia
Here are a few websites that will give you a better understanding of Microtia,
Boston's Children' Hospital explains Microtia in a very easy to understand format. They explain the different grades, causes, questions you should ask your doctor and more.
Aussie Deaf Kids is an Australian website that offers information about Micrtia and Artesia. They also provide detailed information about various treatment options such as hearing aids, surgery and more.
The Foundation’s team of world-class surgeons and medical providers volunteer their time to provide the best corrective surgery and medical care to children born with facial deformities worldwide, regardless of a families’ ability to pay.
Ear Community is a global charitable organization that provides financial and emotianal support to individuals who were born with Microtia and Atresia. The Ear Community will help you with: self acceptance, advocacy, helpful resources, and provides information about the latest in technology for help with hearing loss and reconstructive surgical options.
The Let ThemH.E.A.R. Foundation provides Hearing services for underprivileged American youth; Education for professional and public sectors per cochlear implant hearing healthcare issues and practices; Access development for under-served persons through insurance advocacy and overseas medical missionary efforts; and Research concerning treatment for ear disease and function. Founded by world leader in ear surgery Dr. Joseph Roberson, M.D., LTHF operates in conjunction with the California Ear Institute in Northern California.
Microtia Mingle is a U.K. based support group for children, families and adults affected by Microtia. Microtia Mingle provides a great list of resources as well as articles, research papers blogs and more.
Microtia Videos
Mexican Boy Receives Miracle Ears
http://www.youtube.com/watch?&v=6EDepF01ymM
Paul Stanley battles Microtia
http://www.youtube.com/watch?&v=AlmLYKPaKvQ
Have more Microtia Resources? Share them in the comments below.
Tzvi Schectman is the Family Coordinator for the Friendship Circle of Michigan and the Editor of the the Friendship Circle Blog. You can connect with Tzvi on LinkedIn and Google+